Two-week hospitalizations. Breathing treatments four times a day. Taking enzymes with every meal. Life with cystic fibrosis is anything but easy. Here at Streetlight, we have a Cystic Fibrosis Team that is educated about, and committed to, our friends with cystic fibrosis. So what does that support look like?
Two week “tune-ups,” or hospital admissions, can occur several times a year for those with CF. While at Shands, they can hang out with a Streetlight member while roombound.
Cystic Fibrosis Transition Yearbook 2015: Inspirations and Exhalations
We like to view the transition from Pediatric to Adult Care as a celebration. We are proud of their journey and our support does not end on the pediatric floor. We continue to support our friends with CF in adult care at UF Health. We produce this yearbook to help make the new chapter of care more comfortable. This year Streetlight was able to produce a 40 page book and accompanying e-book with 8 patient testimonials and over 60 staff contributions. Our goal is to use this as a tool to celebrate our transitioning patients, share the legacy of our adult patients, and honor the support provided to the cystic fibrosis community.
CF Dining Days Program
Once an admission, your Streetlight friend will take your order and deliver you a delicious free meal thanks to our generous community partner, BJ’s Restaurant and Brewhouse.
About our Community Partner: BJ’s Restaurant Foundation is a non-profit organization dedicated to supporting charities benefitting children’s healthcare and education, with their primary focus being the Cystic Fibrosis Foundation. Through their ‘Cookies for Kids’ program, they make a donation to the CF Foundation for every Pizookie (an amazing cookie and ice cream desert) purchased. Learn more at: http://www.bjsrestaurants.com/locations/fl/gainesville
The Cystic Fibrosis Team united to design a shirt unique for our community. The color purple and roses are important symbols for CF so we integrated them into our “Inspirations and Exahalations” shirt. Make sure to ask your Streetlight friend for a CF shirt.
Great Strides and Cystic Fibrosis Awareness Month
Our Streetlight Cystic Fibrosis Team participates in and fundraises for the Cystic Fibrosis Foundation’s Great Strides 5K annually. The event includes the walk, games, raffle prizes, and great free food at Albert Ray Massey Westside Park in the month of April. The team also organizes awareness and fundraising events in the month of May for Cystic Fibrosis Awareness Month.