Cystic Fibrosis Population
Two-week hospitalizations. Breathing treatments four times a day. Taking enzymes with every meal. The life of a CFer is anything but easy. Here at Streetlight, we have a community that is educated about, and committed to, our friends with Cystic Fibrosis. So what does that support look like?
Two week “tune-ups,” or hospital admissions, can occur several times a year for CFers. While at Shands, CFers can hang out with a Streetlight member while roombound, or with doctors’ permission come out to teen lounge (We will, of course, observe the precautions for infection control.) Ask a team member for one of our Streetlight CF T-Shirts and a wrist band!
For our patients transitioning from pediatrics to adult care, we wanted to celebrate the past and future relationships in a cool way. So, we decided that to acknowledge the shift, we would make a yearbook complete with all of the people our CFers would have met in Peds (doctors, nurses, etc), as well as the people they are going to meet in adult care. The best part? Graduating CFers get their own personal bio and picture page. The journey through pediatrics is a big deal. The next step to adult care can be daunting. We like to celebrate the landmark, help introduce the new players, and continue supporting our CF friends on the adult floors.
Every CF patient transitioning from pediatric to adult care gets a free meal at BJ’s Brewhouse shared with a family member or two, and their Streetlight friend. And just so you know, BJ’s Restaurant Foundation is a non-profit organization dedicated to supporting charities benefitting children’s healthcare and education, with their primary focus being the Cystic Fibrosis Foundation. Through their ‘Cookies for Kids’ program, they make a donation to the CF Foundation for every Pizookie (an amazing cookie and ice cream desert) purchased.
Streetlight represents our CF friends while walking and running in the annual Great Strides 10K Walk here in gainesville. Great Strides is an awesome community event that raises support for CF research. See you there next year!